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Savior Siblings and One Family's Battle to Heal Their Daughter: A Heartbreaking and Inspiring Story of Love and Resilience

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Published in The Match: Savior Siblings And One Family S Battle To Heal Their Daughter

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The Match: Savior Siblings and One Family's Battle to Heal Their Daughter

by Beth Whitehouse

4.2 out of 5

Language	:	English
File size	:	616 KB
Text-to-Speech	:	Enabled
Screen Reader	:	Supported
Enhanced typesetting	:	Enabled
Word Wise	:	Enabled
Print length	:	273 pages

This is the story of a family's battle to heal their daughter, who was born with a rare and debilitating disease. The family faced many challenges along the way, but they never gave up hope. Their story is an inspiration to all who face adversity.

The Beginning

When their daughter, Ava, was born, the doctors told her parents that she had a rare genetic disease called spinal muscular atrophy (SMA). SMA is a progressive disease that affects the muscles and nerves. It can cause weakness, paralysis, and respiratory problems. There is no cure for SMA, but there are treatments that can help to slow the progression of the disease.

Ava's parents were devastated by the diagnosis. They knew that their daughter would face many challenges in her life. But they were determined to give her the best possible care and to make sure that she had a happy and fulfilling life.

The Journey

Ava's parents began a long and difficult journey to find treatment for their daughter. They traveled to different hospitals and met with different doctors. They tried different therapies and treatments.

Along the way, Ava's parents met other families who were also facing the challenges of SMA. They shared their experiences and supported each other. They learned from each other and they helped each other to stay strong.

The Savior Siblings

As Ava grew older, she developed a special bond with her younger brother and sister. Her brother, Ethan, and her sister, Lily, were always there for her. They helped her with her physical therapy and they played with her and made her laugh.

Ethan and Lily were more than just siblings to Ava. They were her best friends and her protectors. They were her "savior siblings."

The Miracle

In 2019, Ava's family got a miracle. A new drug was approved to treat SMA. The drug, called Spinraza, has been shown to slow the progression of the disease and to improve motor function.

Ava was one of the first children to receive Spinraza. The drug has made a significant difference in her life. She is now able to walk and run, and she can play with her brother and sister like any other child.

The Future

Ava's family is grateful for the progress that she has made. They know that she will continue to face challenges, but they are confident that she will overcome them.

Ava's story is an inspiration to all who face adversity. It is a story of love, resilience, and hope.

How to Help

There are many ways to help families who are facing the challenges of SMA. You can donate to organizations that support SMA research and families. You can also volunteer your time to help families with SMA.

Here are some organizations that you can support:

Cure SMA
SMA Foundation
Families of SMA

Ava's story is a reminder that even in the darkest of times, there is always hope. With love, resilience, and a little bit of help, anything is possible.

The Match: Savior Siblings and One Family's Battle to Heal Their Daughter

by Beth Whitehouse

4.2 out of 5